Jimmie's Miraculous Journey: September 2010

Sunday, September 12, 2010

Yesterday . . .

Yesterday was Jimmie's 19th month birthday! Yesterday was also the annual Overland Park Regional NICU reunion! A fun post coming later...

My family and I have a nasty virus so I'm moving slow on this.

Love,

Amber

Thursday, September 2, 2010

Rachael and Justin will have them all over their house. Jimmie taught himself how to open doors this afternoon. Rachael was in their basement doing something when she heard a noise and then Jimmie's voice. She went to check and there was Jimmie standing at the top of the stairs with a self satisfied smile on his face. Rachael quickly went up the stairs and shut the door again and asked Jimmie, "show momma Jimmie.." So he smiled, went up on his tip toes, grabbed the door handle, pulled it down and the door popped open!

This is BIG TROUBLE! Rachael and Justin will now need to install some sort of safety locking system on some of their doors.

Jimmie is doing okay. He's gaining weight very slowly though. Only 3 ounces this past month. His nutritionist (yesterday) suggested an appetite stimulant. Rachael researched it and really does not want Jimmie to use it. She feels strongly about Jimmie naturally taking in what he needs to. She is trying to be relaxed with his weight gain and accept that this is just where Jimmie is right now. He is continuing to grow in height and is developing well. Remember she is not supplementing what he eats with tube feeds anymore. She never did very many tube feeds and even back when he was on tube feeds almost exclusively he never responded to it with good weight gain. So she knows that is not the answer.

What Rachael really wants is for him to not get sick as much and for him to get over the sicknesses he does get faster. She feels that will help at least in part with his weight gain.

She is doing a lot of natural things to try to help with his immune system.

We would appreciate some fat prayers and prayers for health for our little Jimmie!

Here are those videos I promised! Jimmie motor boating, Jimmie honking the boat horn and Jimmie in the aftermath of some brown sugar shenanigans . . . . He's so CUTE!

Love,

Amber

More Blog Description

After Rachael and Justin's first baby Gracie Anne was stillborn at 23 weeks 6 days gestation- (April 19th 2008) due to Turner's Syndrome, Cystic Hygroma and Fetal Hydrops, we were all overjoyed on Jan. 6th 2009 to learn they were expecting a healthy boy. Not even a week later at 20 and 1/2 weeks gestation Rachael had some alarming symptoms and was diagnosed with incompetent cervix/pre-term labor (cause unknown). She underwent an emergency cerclage and was on hospital bedrest for a month. Then February 11th she went into labor and it could not be stopped. She had her little boy at 24 weeks 6 days gestation. This blog is the story of Rachael's time on hospital bedrest, Jimmie's 88 miraculous days in the NICU and now a joyous homecoming and life at home. As told by Rachael's sister, Jimmie's Auntie Amber.