This is a video Justin shot right after Jimmie's bath on Saturday. The first part is a little shaky and hard to see, but then it gets good!
Jimmie is doing really well today. He's very content and happy to be held for hours. He is not having too many desats or bradys.
He received a special shot today called Synagis. It's a medicine used for "prophylaxis which is a monoclonal antibody against RSV". From what I understand- with immunizations you are actually causing your own body to create an immune response (antibodies)by introducing the disease to your body. This is basically a shot of RSV *antibodies*. So Jimmie's body is not being exposed to RSV- he's just been given antibodies in case he is exposed. Again this is how I understood it. This shot is VERY expensive (hopefully insurance will cover it) and is reserved for babies and children with Chronic Lung Disease and other serious heart, lung and immune problems. Chronic Lung Disease is defined by being on oxygen for more than 30 days after birth. The Doctor recommends this shot every month of RSV season- which I think is October-April. So Jimmie may have 1 more. They held off last month. Rachael was a bit nervous because he had bradycardia (slow heart rate) with the Afrin in his nose and he sometimes has some mild tachycardia (high heart rate) with the Albuterol(lung treatment). He has done fine with this Synagis. No ill effects have been noticed.
The Nurse Practitioner made the comment today that what happened last week wasn't really Jimmie's fault. It was really because his nose had been compromised. She wasn't trying to find blame, her point was just that he continues to be a superstar! And his nose has actually been compromised so badly BECAUSE he has done so well. The Doctors just do not have much precedent for a micro-preemie like Jimmie only being on the ventilator for 5 days. Jimmie's Doctor said the other day that he most likely will need plastic surgery to fix his septum. Not right away or anything, just eventually. )-:
Jimmie weighed in today at 2 pound 9 ounces! He's really chunking up. (-:
Thank you for your continued prayers for Jimmie's health and safety.
Love,
Amber
P.S. LOL! I totally got his weight wrong when I posted this earlier. 2 pounds 9 ounces is right!
Am, I am hoping that you meant 2 lbs 10 oz, not 1 lb!!!! anyways, hopefully there will be no ill effects from the shot. the video is awesome! love you all of you!!!
ReplyDeleteJimmie is simply amazing! I am inspired. Thanks for sharing the video - he is absolutely precious. And his weight gain - it seems that in spite of it all he is determined to make it.
ReplyDeletePraise the Lord for He is good.
What a great video. He is so cute and sweet! Give him kisses from all of us!
ReplyDeleteLove you all,
Adrian and Janelle
So happy that Jimmie is continuing to improve! I'm keeping Jimmie in my prayers!!! Keep packing on those pounds buddy!
ReplyDeleteWe continue to speak the Life of Jesus and His blood to flow through Jimmie...Rachael&Justin as well...we love all of you...
ReplyDeleteSandra, George and the Binger bunch
We are checking on Jimmie and praying for him every day. He is really blooming now!
ReplyDeleteDenise and Shannon
Yay Jimmie! We are so proud of you! You are such a handsome warrior! We love seeing videos of you.....The Lord is your strength and your shield! We love you all.
ReplyDeleteWhat a sweet little miracle man....can't wait to meet him one day :) Love and prayers to all, :)A(:
ReplyDeleteThank you for the update! We continue to pray for Jimmie. I'm a preemie mom - my son gets Synagis every month...it's terrific. He's been really healthy, even with a 2 year old big brother in the house. Our hearts go out to you. What a journey of love! God bless you.
ReplyDeleteI new he would get to that 2 lb. mark and would be fine. He likes to have challenges as you two do and this was his second one may have one more or deside that was it and will wait till he is much older working on water skiing or building something (cars) lol. Our prayers are with him and the 2 of you. Keep strong as you are and May will be around the corner before you no it and he will be ready to come home.
ReplyDeleteGordon and Shari
Wow! What a beautiful little boy you have!! I love his eyes. He is such a strong little guy. I think he will move mountains one day. You guys are still in our prayers, I love that he is gaining weight. WooHoo!!
ReplyDeleteKathy Barnes