Friday, October 7, 2011
Friday, September 16, 2011
I know this is not the post you were all looking forward to. That one is still in drafts at this moment. Instead you get this little story.
It has turned colder here. So that means not as much time outside. Jimmie would spend all day outside if I let him. I did this summer, you should see his tan. When Jimmie is outside he is playing with his dog Mack, they are inseparable.
I know where Jimmie is because Mack lets me know. I have witnessed Mack gently taking Jimmie's arm in his mouth and lead him away from places he is not supposed to be. If I ever lose track of Jimmie I call Mack and say where’s baby? He takes me to him. Did I mention Mack is an outside only dog? Jimmie has never really seemed to want him inside. Until today, well really it all started yesterday. I was folding laundry in our room, I knew Jimmie was in the living room playing. I came out to put some towels away and Mack was in the house, not just in the house, but with his paws on my kitchen table licking Jimmie’s tray. I quickly shooed him out told Jimmie not to let the dog in.
Fast forward to today. I was cleaning the kitchen listening to music. I knew Jimmie was in his room playing with toys. I went to check on him, he had shut the door and the light was off I could hear he was playing with a light up toy in the dark. I left him alone, I checked again same thing, I did not open the door. Then he comes out with you guessed it- the DOG! He was in his room for at least 20 min? Now his room smells like dog. I might be fighting this battle all winter long.
Sunday, June 12, 2011
God is my strength and power: and he maketh my way perfect.
He maketh my feet like hinds' feet: and setteth me upon my high places."
Jimmie in a couple of weeks we will celebrate this milestone with family and friends! We are running, jumping, dancing, singing and playing with you on our "high places" on "your high places" Jimmie! It is good to be here..
I thought I'd repost your montage I made for you this year. You love it and you watch it all the time. I also linked it for you on the side of the blog. (-:
Love you forever,
Monday, May 30, 2011
I like hangin with my Pa!
I like pullin silly faces with him too.
I also love ridin things with wheels!
Look mom! I'm awesome!
Ok, now I know this is starting to look bad . . .
Real real bad . . .
But it's cool, I'm tough, no biggie...
Tuesday, May 10, 2011
Amber went to the hospital on Monday. They tested for the flu and gave her an IV for fluid. She was negative for the two flu strains they tested for. She was relived to not need to be medicated. She is feeling better, still sick but better. David has been very sick too, He is feeling better, McKenna seems to be getting over it. Cole still had a high fever today. He should start feeling better by tomorrow.
Amber had her regular OB appointment today. She has not lost weight! They want her to eat iron rich foods and not supplement right now. This was the first Doc. visit that her urine was clean yea! She is basically back to where she was before she got pregnant. The Doc. was happy about that. They are going to start weaning her off the zofran pump when she is feeling better. (getting over the flu) Her BIG ultrasound is next week. Please pray with us that the baby looks great.
My household seems to be better. I am feeling better. Jimmie still has a ton of snot, his cough seems to be better. I do not hear any crackling in his chest but he is still congested.
Lets pray Mom and Justin stay well.
Jimmie was playing outside yesterday in the shed. I caught him in the old firebird. If you look closely you can see the snot. He is sporting a nice farmers tan these days.
Saturday, May 7, 2011
McKenna has a fever of 102.7 and is lethargic and has the chills
I have a fever of 100 and a very full head and sore throat
Jimmie still has a lot of snot, he has been kinda gaggy, and a few coughs here and there. I am listening to his lungs with my stethoscope (yes I do that) I don't hear any crackling but I do worry about his lungs.
Andrea (my Mom) she is trying to tend to everyone. Mom is not sick but lets pray that she stays that way. Thankfully Justin is home today and I think Rod and Kathy will come out tomorrow to help me.
I know this is not the end of the world but it feels like it. Can I just keep Jimmie in a bubble please!
Thursday, May 5, 2011
However he is very concerned with his lack of speech. His language is very good, i.e. he understands pretty much everything we say. It is looking very much like apraxia (the same diagnoses that Amber's daughter McKenna has) Interestingly enough it is not something related to his prematurity. He communicates very well using signs, he has about 50 . He has about 20 words/sounds. but the average person could understand maybe 2 of them. We are moving to speech therapy two times a week. We have 1 hour session, he is not yet two adjusted so his attention span is short, he concentrates and works hard for 10 min out of the hour. I work all day with him on sounds and words. It is just really hard to see him struggle for every sound. He wants to communicate and has a lot to say. In the long run will be OK, but part of me wants to say "give him a break breathing, eating, and talking should not be this hard" I know that we are so blessed at how well he is doing and how much worse it could be.
The big change: Dr. H. wants me to have him involved with peer groups. Jimmie's therapists have been pushing me to do this for a few months now. They think it would really help his verbal skills. I am really trying to let go and not worry about him getting sick. Dr. H said he needs to get sick and build up his immune system. I know this but I really hate it when he is sick ugh. So he will start Sunday School at the end of May (two adjusted) I will try and do play dates with cousins and such. I could really use prayer to let go.
So all and all very good, Dr. H wants to see him in December to start talking about when he turns 3 (gulp) we will lose all of our in home therapist and have to transition to the school district, or private therapy.
PS Amber has managed to stay out of the hospital for 3 weeks. She is on the Zofran pump 24 hrs a day (with a few min off to change the site) She is having some anxiety for the next few weeks. They will try weaning her from the pump. If that doesn't work it is assumed she will stay on it for the whole pregnancy. She also has the anatomical ultra sound in a few weeks. Given my history with it she is anxious about that as well. She is having pain in the needle sites around her belly button she is now changing them every 12 hours and it is helping. She is gaining weight just very slowly (sounds like someone else?) She is doing better at staying hydrated and able to eat but is still experiencing extreme fatigue. Her Iron levels are low but they don't want to supplement right now. The supplements can cause stomach upset, she had this side effect from them in the past. The low levels are contributing to the fatigue. Over all she is better.
PPS Jimmie and Amber and her kids are sick fever colds etc.. Pray for them.
Saturday, April 23, 2011
P.S. Amber is doing better. She has been set up with home health and is on a Zofran Pump. This works by pumping the Zofran in under her skin through a small catheter. She has to stick herself every 24 hours to change the site. However she has started developing painful lumps under her skin so now she has been advised to stick herself and change the site every 12 hours. It's all worth it though because this pump is keeping her from needing iv hydration. She is finally able to eat and drink enough to stay out of the hospital and gain just a little bit of weight. She still suffers from nausea when she moves around too much and when she drives so she still could use your prayers. We are so grateful to have you all praying for us!
Tuesday, April 19, 2011
Tuesday, April 5, 2011
Sorry about the MIA again. This is Rachael writing (I know gasp) I just wanted to update.
Amber is still very sick. She finally saw an OB today. She needed fluid and had an elevated heart rate because of dehydration. Last I talked to her they had her hooked up to IVs They found the baby on the ultrasound. It looks great. She will be going back to the Doctor on Monday to set up a long term care plan. She will be 12 weeks at the end of the week. Please continue to pray for her. She sounded upbeat and relived that the Doctors would be watching her closely. My Mom has been taking care of her and the kids. Amber’s good days are laying on the couch not feeling nauseated. Bad days are laying on the couch feeling nauseated and vomiting.
Last week We (Amber and I) were supposed to visit out dear friend Amy in Vancouver Canada. Jimmie ended up getting sick along with Ambers two children. Vomiting, fever, that kind of thing. We cancelled the trip. We were very disappointed but knew with the kids being sick it would be no fun. Turns out Ambers health went way down hill (see above).
Jimmie came though the sickness very well. He is 100% better now. I don’t think he lost much weight. We are going though a little rough patch with the sleeping, He decided to do the behavioral puke thing again. It only happens when I put him down. So Daddy gets to take a turn with the bed time routine. He is still sleeping about 11 hours at night in his crib and about two hour naps. This morning he was looking outside doing his unh? unh? I look over at him in his high chair he was making the sign for sun! He wanted me to talk about how the sun was coming up. I love that kid! He is still having a hard time speaking but is trying to say more things. I will leave you this this recent picture. It really captures Jimmie's need for movment!
Thursday, March 10, 2011
Anyway-- Jimmie is truckin along doing great! Rachael texted me this hilarious picture of the goofy smile he's pulling lately.
Jimmie is still sleeping really well through the night in his own bed in his own room. He's eating pretty consistently and gaining weight (just slowly) as always. He's working hard in speech therapy. All signs still point towards Apraxia. It's a little early yet to know for sure though...
Tomorrow Jimmie will be 25 months old! Rach and I have decided that we will do 4 developmental birthday letters this year instead of 1 every month. So the next big developmental letter I will write to Jimmie will be May 11th. My plan for the blog this year is to post once a week with a picture and an update for the week. If I'm unable to do that perhaps I can talk Rachael into doing it. (-:
Thank you for your care and prayers for Jimmie!