The March For Babies March Of Dimes event in the KC Power And Light District (14th & Walnut Kansas City , MO 64106)is coming up May 1st. It's a Saturday this year!! We would love for you all to come out and walk with us. Rachael and Justin and Jimmie will be there! If you've fallen in love with Jimmie through this blog and would like to meet him this will be the perfect opportunity! Go to Jimmie's Team Page if you want to sign up to be on Jimmie's team or make an online donation. This is what Rachael wrote on her page for the event:
"Please join us in walking for Jimmie, Gracie, Gabby, Cole, and Mckenna to name a few. After Gracie passing at 23 weeks and not a year later Jimmie being born 15 weeks early and spending 88 days in the NICU this walk is very near and dear to our hearts. This year will be especially wonderful as we get to have Jimmie there. Last year we walked while he was still in the NICU. We are looking forward to seeing our friends there, as well as meeting new ones. Please join us."
The mission of March of Dimes is to improve the health of babies by preventing birth defects, premature birth, and infant mortality.
Rachael is also designing t-shirts this year. They'll be $20 and they have pictures of Jimmie on them! If you want a t-shirt let Rachael know before Friday, April 9th. Email her at email@example.com.
We are fighting discouragement the last few days because of a recent weigh in. Jimmie's Nutritionist comes once a month and weighs him and discuss any concerns with Rachael. He had been eating so well that we were just positive he was gaining. It turns out that he lost weight. He's now 14lbs 10ozs, and he didn't grow in length or head circumference.
We have been round and round on all different theories as to why he didn't grow, but what we have landed on is something does not add up. So Jimmie will go into Dr. S. next week and they will draw blood and run a full nutrition panel to see of they can figure out what is going on inside his little body. Perhaps he's anemic..? Something with his thyroid..? Hmmmm...
Anyway- we are assured that ultimately he'll be okay, but it's just exhausting, stressful and discouraging to work so hard with his eating and not see it pay off. He's still only receiving one tube feed in a 24 hour period. Rach is open to adding another, but he doesn't eat as well when she does that. Rachael is also adding some higher calorie foods. He has dropped off a bit with what he's taking in as well. He is cutting another tooth, so perhaps that is the culprit for that.
At this point Jimmie is about the size of a 4 month old and is pretty close to the bottom of the "preemie growth chart"...
Yes- he is very active and yes- small skinny babies do run in the family- both sides. Those facts give us a bit of comfort. It's just hard because there is so much pressure on Rachael about his care. He is just constantly under a microscope. It's hard for her to relax and just enjoy her baby. And with all she and Justin have been through with their children there is a back log of emotional trauma and exhaustion.
So please pray for Jimmie that he'll eat and drink well and GROW!!! And please pray for Rachael and Justin that they "...will gain new strength; they will mount up with wings like eagles, They will run, and not get tired, They will walk and not become weary." Isa. 40:31
Thank you for your support!