Jimmie has been puking a lot today. )-: However since Rachael realized he needed a different tube and they put the bigger shorter one back in he hasn't puked his tube up. He has done pretty good taking his bottle. He's taken 70 mls a few times and isn't screaming and struggling. Of course that seems to change very quickly. He still has one more feeding this evening I think.
I'm eating my words about Dr. P. He came back in today and spent over 30 minutes talking to Rachael and Justin. He is proving to be very open minded. He even made the statement that mixing western and eastern medicine could be very helpful. He is willing to try oxygen for Jimmie. He is also open to enzyme therapy and probiotics, both of which Rachael brought up. He wants to very systematically try things. He wants to know what works and what doesn't. So - we'll see . . . there may be some experimenting happening which we are totally excited about in that context.
Dr. P. told Rachael and Justin this morning that *on paper* Jimmie looked great! He is gaining weight and very healthy. He said that he could never recommend a g-tube (surgically implanted feeding tube) for Jimmie at this point in time. He said that would be gross negligence and fodder for malpractice on his part if he did that. He said the risks of that far outweigh the benefits to Jimmie. Jimmie would have to prove over and over that he wasn't able to thrive any other way. He said that Jimmie is growing and gaining and that means eventually his LES ( lower esophageal sphincter) will mature and his terrible reflux will subside.
Amy we totally appreciate your input! I read your comment to Rachael over the phone this evening. It's nice to hear from somebody who's "been there done that" and is so straight forward.
I thought the whole discussion with Dr. P. was very encouraging, but Rachael sounded very tired and down anyway. She and Justin need a refresher. They need perspective and grace to deal with this. I think this grace has to come from Above! Lord please comfort them and give them strength. I know that Rachael and Justin are very discouraged and weary from this struggle. Rachael- of course- wants the whole thing to just go away, for there to be some magic potion to make everything all better. Unfortunately I think that the most likely outcome to this is that they keep limping along until Jimmie outgrows his issues. It's a broken road, but that doesn't mean it can't be blessed right? (-:
We are so thankful for your prayers!