Rod, Justin and Rachael came home late last evening. My mom went out there (to Odessa) to spend the night. Jimmie was completely exhausted and slept all night. This morning at 6am he took 54mls. Since he has not completely stopped eating, he is not truly starving nor dehydrating so he will not be hospitalized. Rach spoke to Dr. S. this morning. The plan is they are going to do 2 bottles a day with formula so they know for sure his minimum calorie intake will be. Rach will mix in breast milk in place of some of the water. And they will continue to look at his weight gain a week at a time.
He could have just had a really colicky day yesterday. He did have a lot of gas. We'll see . . .
There are 2 issues going on here - 1. Jimmie 2. Rachael . . .
Jimmie DOES have feeding issues. If everything is not perfect in his environment he struggles. If he can't breathe well it's horrible! Which is why the O2 has made such a difference. Thanks Whitney for your comment because we are starting to suspect oral aversions and sensory issues as well. Rachael has called his OT this morning. We have experimented some with different nipples. Maybe the OT will be more help in that matter. Jimmie is still in the acceptable (barely) amount of weight gain this week. This whole thing may end up progressing to observation at the hospital and an NG tube while a plan is created. It may not . . . But until Jimmie either completely stops eating or starts losing weight the risks of the hospital outweigh the benefits.
Rachael continues to really struggle mentally/psychologically. She is easily sent way down into depression, anger and anxiety. I asked, "So what do I put on the blog this morning Rach? That you are crazy?" She half laughed and said, "yes!" We are kind of laughing about it this morning, but last night there was no laughing just crying.
Yesterday was just a disaster. Justin had been wanting to go down to the lake house this weekend for the big car show. Friends and family are planning to join them for a fun vacation weekend. Rachael did not feel she and Jimmie should go, but she felt the pressure and went. It proved to be too much for her and possibly Jimmie. It took the better part of the day to get down there because they had to keep stopping to try to get Jimmie to eat. Once they got down there they stayed a horrible hour or so Jimmie frantically biting the nipple and screaming the whole time. And then got back in the truck (Rod hopped in with them) and drove back home.
Rachael (and Justin for that matter) was not in a good place mentally at all -just very angry, anxious and upset. So my mom and Rod spent the night with them to help. This morning Jimmie is very happy and charming. He's eaten a bit and is cooing, smiling and just being delightful. Rachael is feeling she may have overreacted. *sigh* Rachael's personality is very strong. She likes things to be under control. Kathy has admited to me that she is exactly the same way and she feels that Justin married his "mother". (-: What Rachael really needs to do is "let go". She feels because of her dedication and tenacity she has forced Jimmie to eat enough to stay out of the hospital. We want her to let go and let Jimmie be Jimmie. That way his problems can fully manifest. Rachael is afraid to let go and in her words, "watch him waste away." We all know that the medical professionals helping with Jimmie would never let that happen. It is just really hard for her to "let go". Let go of the control she "thinks" she has. I believe this is a big part of what is making her "crazy".
I guess truth is- that Jimmie does have feeding issues, but poor Rachael has some issues as well, and sometimes it really hard for us to sort out one from the other. Rachael is an amazing mother. She is super proactive with Jimmie. She does everything and I mean EVERYTHING for him that is humanly possible. Well actually I think she's trying to be more than human which is *not* possible. Pray for her to LET GO!
Justin and Rod will leave this evening and go back to the lake and try and have a fun weekend Rachael and Jimmie will stay home and my mom will stay with them! Brother David may end up praying with Rachael- for her!
This whole thing the last 2 months has been really hard for me to blog about. It's hard for me to see my sister suffering this way- much less write about it. It's hard for me sometimes to accurately convey the situation when I'm trying to sort through Rachael's reality and Jimmie's issues. I'll keep trying because we know you all will pray. And that's what we need!