Jimmie's Occupational Therapist came yesterday almost as soon as she heard Rachael needed her. She showed up just as Jimmie was starting a feed- so perfect timing. She does not think it's an Oral Aversion as those kids reject anything near or in their mouth. Jimmie sucks on anything that he can get into his mouth. His hands, your shirt, your collar bone, his paci.... She thinks that it has to do with the discomfort he has experienced with his reflux. He's remembering what it feels like and as soon as he gets enough milk in stomach to not be starving he stops. Basically he doesn't fill his tummy because that has caused him too much pain. Rachael is keeping him on the Xantac and may try the Prevacid sometime in the near future just make sure he is not still burning. His puking has been almost non existent since he has been back on O2 though so that is good!
The OT said it could take up to 6 months for Jimmie to forget and stop associating his feeds with pain and discomfort. Poor little guy.
Rachael is doing much better. She has been able to look up and out and let go. Jimmie is taking very small feeds every two hours or so. He is probably not getting enough to really chunk it up, but we hope it'll keep him out of the hospital. He takes the small amounts pretty peacefully. Rachael is going to effort to look at the big picture and go from there. Jimmie's Dr. S. and the Neonates at Children's will help her make sure Jimmie is taking in a safe amount.
Justin and Rod did go back to the lake. Pray for them and Kathy as well. Everybody has struggled with this in their own way and it's been very hard for everyone close to Justin, Rachael and Jimmie. Justin was doing very well yesterday before he left. He was very encouraging and supportive to Rachael and he seems to be starting to be able to pull Rachael up some when she's down instead of joining her there. That is definitely what Rach needs. She needs to be surrounded with positive hopeful energy.
You guys are great with your support and prayers! Keep fighting for us! We are so very grateful.