And we go back down . . . Thank you for riding this roller coaster with us. Last night Jimmie had a bad reflux episode and screamed in pain. Ever since he has refused to eat by mouth. Today he has seemed to be refluxing more, but isn't in a lot of pain with it. After a bad episode it seems it takes a day or two before he attempts the bottle again. Maybe it hurts to swallow? Maybe he's scared it'll happen again? He can't tell us- so we don't know for sure . . . Poor guy.
Rachael said he tries so hard and he is so brave. He continues to be such an amazingly happy baby. Through it all he maintains such joy and peace. You really couldn't even call him a fussy baby. He's MUCH less fussy then both of my children were, "are" for that matter. (-: This is a huge blessing to us! Thank you Lord.
It is apparent though when Jimmie is uncomfortable and in pain with his feeds and it's very rough to see him trying so hard and suffering. Rachael has noticed he seems to have a much harder time with his 2 formula feeds then the others which are mostly breast milk. She's going to speak to Jimmie's nutritionist about this tomorrow. She'll also speak to Jimmie's Pediatrician Dr. S. about upping his dose of Prevacid. Jimmie has an appointment with Dr. S. tomorrow I think. Or maybe it's a Friday . . . I'll be updating everyday while we are in this crisis anyway.
Here is Rachael listening for tube placement tonight. Thanks mom for these pictures! Mom has been working very hard doing TKM therapy on Jimmie the last few days! We find it very helpful and comforting to have this hands on energy work as part of Jimmie's therapy. Despite Jimmie's terrible reflux his upper GI scope showed no scarring or narrowing of his airway or esophegus, which is so awesome! We know that the TKM is helping Jimmie in this journey as it has since before he was born.
He was still in the hospital here . . . so cute! (-:
Thank you for fighting for Jimmie! We appreciate your prayers.