Jimmie has taken a little over 2 ounces today total. He has eaten his solids as usual, but is having a really hard time taking in liquid. He is not quite 5 months old adjusted age so the majority of his nutrition would/should come from his mommy's milk. He needs be taking in 18 to 24 ounces in a 24 hour period.
Rachael said if you would have told her Jimmie would take 80mls today she wouldn't have believed it. So in that sense Jimmie has done better than she thought he would. However this evening he is hungry, sad and frustrated. He doesn't understand why his belly is empty and he tries so hard with the bottle, but just can't seem to settle down, suck and swallow. They have used a sippy as well and it's the same.
Rachael just got off the phone with Dr. H. He asked her if she saw any improvement at all and she answered that she saw Jimmie's rooting reflex with the bottle and that hasn't been present for a while, but other than that, No. He is very hungry and still not taking in even enough to take the edge off.
Dr. H. is having Rachael put the tube back in for Jimmie's 9pm, 12am and 3am feeds and then they are to take it back out to try again tomorrow. They already have an appointment to acess how Jimmie is handling this physically with Dr. H. Wednesday morning.
Rachael is having a very hard time seeing how this scenario is going to change. It is only the first day so we are encouraging her that there is still hope!
Please keep praying!
Love,
Amber
Even the little boys are praying for you (though Lorne felt the need to add "God help Jimmie eat and learn to talk" because he simply could not understand why he couldn't talk yet. :)
ReplyDeleteHang in there - hopefully tomorrow will be THE day!
Kara
I'm glad that he took in some today. That is definitely an improvement. Hopefully, with each day he'll take more and more. Don't give up hope. We love you guys so much.
ReplyDeleteYou have INFINITE PATIENCE! Just give him a little more time...Jimmie is going to get better and better...he needs practice and time. He WILL get there. Today was a breakthrough...tomorrow will be another breakthrough. And the day after, too!
ReplyDeleteGod is so good!
It sound encouraging! We're praying for all of you. We love you all so much!!
ReplyDeleteLots and lots of love,
Adrian and Janelle
it does sound like progress. that's great that you saw some rooting! i know that it is going to be frustrating, but you can do it Rachael! you have more patience than you think! after all you were on bedrest for a month, and then in the NICU for almost 3 months! this will be a process too. we will be praying for you, Justin, and Jimmie! love you!
ReplyDelete