Sorry for the broken promise to post yesterday. My two kiddos have been sick which equals lots of work and little sleep.
So on labor day my mom's side of the family had a big "get together". Rachael and Justin decided to try to have a normal day and attend with Jimmie. It went really well. An announcement was made to everybody before they got there. The announcement went something like this, "Rachael, Justin and Jimmie are coming! They will be hanging outside only. No one is to touch him or hold him. (other then my mom.) Everyone can stand around at an appropriate distance and look at him and visit."
This may sound extreme, but RSV season is right around the corner and there is already this nasty cold thing my kids have going around. (we are still debating whether Jimmie has had that or not- we'll probably never know. If he did, he breezed through it.)
This was the first extended family get together that Jimmie has ever been to! It worked because the weather was nice enough for them to be outside. Everyone was so excited and happy to see Jimmie. For some of our family it was the first time they had ever seen him in person! Most of our extended family just follows this blog like the rest of you for their "Jimmie fix". (-:
It was funny because there was this crowd standing at a distance just looking at him- like he was a monkey at the zoo or something. The cutest most amazing and miraculous monkey ever!! (-:
Rachael and Justin are trying to make his life as normal as possible. Despite the feeding tube and the extreme restrictions related to keeping him healthy. Jimmie has never been in a restaurant or a grocery store. The only place he really goes since he got his NG tube is his doctor's appointments. They use to take him to church where they sat in their own private room and he used to come visit us and go to moms, but now it is such a logistical nightmare to go places that they just don't.
All of the kids had lots of fun in the pool.
Including my daughter- McKenna.
Cousin Juliana . . .
And believe it or not- JIMMIE! (-:
It was a fun day! Good food, fun in the pool and good company! (-:
Yesterday Jimmie was doing this new thing where he was really interested in his bottle. He really acted like he wanted to take it. He would latch on and start sucking, but as soon as he swallowed he would just freak out and start screaming! He did this over and over. Obviously Rachael thinks it hurts him to swallow. I haven't heard yet if the endoscopy has been scheduled. I know they are working on getting that done though. Jimmie weighed 10 lbs 13 1/2 oz this morning on their scale at home. Rachael said he's gained better in the last two days on her breast milk then he did on that other formula they were trying.
We really appreciate your support and prayers for our little Jimmie Jim Jim. I hope you all had a good holiday weekend.