A Long Haul?

Jimmie is being pretty inconsistent with eating from a spoon and drinking from a cup. At times he fusses and refuses it altogether. Other times he'll eat and drink a little. Rachael is starting to come to the conclusion that they might be in this for the long haul. Like years... She is really starting to feel that now Jimmie has aversions to eating. When a child has aversions it can sometimes take a few years and a lot of hard work to get them over it. There is no way to know for sure that this is the path Jimmie is taking. Rachael would love it if he surprised her and suddenly began to be consistent and interested.

However it's going to actually help Rachael to be patient and get on with life, so to speak, if she expects this thing to be a long process.

Rachael is also researching a leading clinic for tube weaning that's based in Europe. Graz, Austria actually. They do have an email coaching program that Rachael is very interested in for Jimmie. She really wants the support of Jimmie's current Doctors though before she tries this. And also to find out if Jimmie is a candidate.

I'd like you all to pray that she'll get Dr. S's support for this and that if it is the way she should go with Jimmie that it will all be made very clear to her and Justin.

If the way is cleared for them to go the route of the Graz Clinic I will start giving more details about this. For now though just pray for Jimmie to eat. Pray that his mind would change and be receptive to eating by mouth.

Thank you for your comments, support and prayers.

We haven't had new Jimmie pictures for a while. Are you all in need of a Jimmie cuteness fix?? I certainly am!! I'm going to see him on Friday and I'll be sure to get some pictures and maybe video!

Love,
Amber
P.S. Family and friends and anyone else following McKenna's (my daughter) journey, I have updated her blog.